December 26th, 2013. Day +1021. Charlotte’s clinic appointment.   4 comments

We have had a terrific month.  Charlotte did a wonderful job singing in the Elementary School Holiday program.  We loved seeing her on stage and smiling and waving at us!  I still find myself humming “Hearts around the world” and a few other songs they did.  The following weekend, Charlotte and her friend Brady played Mary and Joseph in the Church nativity play.  They were so cute.  And Molly was a happy little sheep!

We had wonderful Christmas celebrations this year.  Lots of family.  Lots of toys.  Lots of fun and laughter.  Lots of food.  And lots of eggnog!

We had Charlotte’s first appointment with Dr. Diamond since July.  Charlotte did very well with her blood draw, only crying a little bit and not yelling, fighting or screaming.  And she laid perfectly still for the half-hour long echo-cardiogram and didn’t make a peep once during any of it!  After that we saw Dr. Diamond and she went over Charlotte’s echo and CBC results.  Perfect, perfect were her exact words  (WBC  5.8, Hemoglobin 13.1, 263k Platelets and 2800 Neutrophils  .  We are so thankful for that.  I know that today was a very rough day for Amy and me.  We were both on edge and very nervous about how everything was going to go and we just wanted it all over with.  We couldn’t have asked for things to go better and we are so proud of her!!  After discussing how good Charlotte looked,  Dr. Diamond mentioned that she was at a conference earlier in the month and said there is much more evidence now showing that we made the right decision in 2010 in going straight to transplant rather than playing the waiting game.  She stated that there are more statistics out there  confirming that chemo alone would not have been the cure for her AML-M7 and complex cytogenetics.  We assume that “statistics” mean children who have had relapses or have passed away from their disease.  We are so fortunate to have such a well matched donor in Erin.  And we are so happy and grateful now to call her family!  Dr. Diamond continued to mention that our main focus is going to be trying to keep her heart healthy by proper exercise and diet to prevent complications from the harsh side effects of the chemotherapy.  Before we left, we got one more piece of good news.  We won’t be coming back to clinic until December 2014!!  While we love seeing Dr. Diamond and hearing the good things she has to say, we won’t miss putting CJ through the blood draws and the other appointments.  She has been through enough already, we are just looking forward to her spending another year as a regular kid!  Thank you again for all of your prayers and thoughts.  We hope everyone has a safe and happy New Year!

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Posted December 26, 2013 by L. Elske in Uncategorized

4 responses to “December 26th, 2013. Day +1021. Charlotte’s clinic appointment.

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  1. Couldn’t have asked for a better gift from Jesus than to hear all that wonderful news! the pictures are beautiful, those little ones grow up so fast. Merry Christmas and may the New Year be as good to you as these last weeks of 2013 were,

  2. Awesome news! Sending smiles from Sun Prairie! 🙂 🙂 🙂 🙂 🙂

  3. Love, love, love this post! What wonderful test results and I’m so glad Charlotte did so well with the testing. What a brave girl. Adorable pictures!

  4. Every time I am feeling scared about my sons prognosis I come here to get hope. Thank you for continuing to update this. My son is now in remission and finished with treatment for AML M7 as of the new year and as scary as the future is, to know that someone else out there is thriving after AML treatment helps me keep my head up!

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