March 7th, 2013. Day +727. “Perfect, perfect.”   8 comments


Molly is now the same age Charlotte was when she was diagnosed. Talk about PTSD!!!

Today was Charlotte’s clinic appointment (24 months post transplant).  It is common around clinic time for Amy and me to be extremely on edge and very nervous.  I doubt we are ever going to not feel this way, but hopefully it will get easier with time.  Charlotte was much better today for her blood draw.  She kept telling us how she was going to be a brave girl, and she really was.  She still cried and was genuinely not happy, but she didn’t scream or kick or fight this time like she had done the previous couple of visits.  As a result, she settled down much more quickly and she was back to playing again in no time.  Amy and I were both moved to tears at how much she has matured.


Charlotte ready for bed.

Dr Diamond was very pleased with how she looked and her CBC numbers were “Perfect, perfect.”  Her WBC was 7.5, Hemoglobin was 12.2, platelets were 285k and she had 3370 neutrophils.  If they’re good enough for Dr Diamond, they are good enough for us.  Dr DeSantes even popped his head in our room and talked to us a little bit and he was also very happy to see how well she has been doing.  We couldn’t have asked for a better team of doctors to treat our little girl.  Dr Diamond said that Charlotte is now at a point in her recovery where we should be less concerned with relapse and more concerned with the long term effects she may encounter from her harsh treatment/conditioning.  It was very welcome news, but Amy and I aren’t the type of people who will forget about the magnitude of relapse.


Charlotte during round 1 of chemo.

Charlotte during round 1 of chemo.



Monday marks the official two year anniversary of Charlotte’s bone marrow transplant.  We have been so blessed and can never thank everyone who has played a part in Charlotte’s journey-from her talented and loving doctors to her selfless donor, Erin.  And I am certain we wouldn’t be where we are at now without everyone’s help and prayers.

Thank you all so much for being such a crucial part of our story.

Posted March 7, 2013 by L. Elske in Uncategorized

8 responses to “March 7th, 2013. Day +727. “Perfect, perfect.”

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  1. Yay!!! I’m SO happy to read this. I was thinking/praying for you guys all day. You must be so proud of her and how she handled her “poke”. Have fun celebrating!

  2. Fabulous report – It’s amazing how much the girls look alike – adorable.

  3. Two thumbs up from Sun Prairie!!!!! It’s so cute to see Charlotte and Molly in the same jammies…just look at your sweet girls and how far you’ve come! We are so very happy for this day! Love you guys!

  4. Love this great news! Makes my heart happy to know that not only is Charlotte a fighter, but so is her new blood! We have many years of good reports to come, I just know it!

  5. Excellent!! The fear may never go away but so many blessings will keep it manageable. Both girls are soooo cute!

    Sharon Schulteis

    Sharon Schulteis
  7. Your posts always bring me to tears… but happy tears this time! You both are such awesome parents–You rock!

    Cheryl Batterman
  8. Your good news brings joy to my heart! The girls are so grown up!!

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