February 8th, 2012. Day +334   3 comments

Charlotte had her monthly clinic appointment yesterday.  We had lots of fun showing the nurses and doctors pictures of Charlotte’s wish trip.  They were all so happy for her.  Both Dr DeSantes and Sharon said she is looking great!  I really think we could hear that forever!  We spent most of the hour discussing the appointment next month.  It will be her one year post transplant appointment so she needs to get a complete workup again to see how damaging the chemo was to her organs, etc.  She will need another optical, dental and hearing exam as well as an echo-cardiogram.  She will also have lots of labs drawn.  She will have the engraftment study done (to see how much of her blood is from the donor) and an immunization titer.  This test will check her levels to see if she has any remaining antibodies left in her bloodstream.  It is highly likely that the chemo from the transplant has killed it all off and she will need to receive all of the childhood vaccinations again.  Her CBC numbers were not ready by the time we left, so we had to find them out this morning.  Her WBC was 6.8, hemoglobin-12.9, platelets-417k and 3730 neutrophils.  The platelet level is a little high but nobody seems worried about that so we aren’t either!


Thank you so much for taking the time to follow up on her progress!

Posted February 8, 2012 by L. Elske in Uncategorized

3 responses to “February 8th, 2012. Day +334

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  1. Great news….forever I pray you will hear she “looks great” at appointments!!! What beautiful daughters you have, and what lucky little girls they are.

  2. 334 and counting!!!!!! Go Girl!

  3. And thank you so much for allowing us this opportunity! You’ve invited us into your lives, and we can’t say how much we appreciate your kindness. The time you spend updating and explaining and sharing what’s happening with you all? How can we say, “Thank you!” ??? May God be with you all, today and everyday. He is GREAT!!!!

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