November 23rd, 2011. Day +257. The big and little things.   6 comments

Molly has still not been feeling the greatest this last week.  She saw Dr G again on Thursday morning who diagnosed her with an infection in her right ear now.  The prescription is for another 10 days on a stronger antibiotic.  The side effects can be pretty loose stool so she is also on a probiotic capsule a couple of times a day.  Her fevers continued thoughout the weekend, not getting much better until Monday.  But she has been fever free since then and is starting to get back to her old self a little each day.  Her nose is still a little runny, and Charlotte’s nose hasn’t dried up completely yet, but they are both quite happy, and we have learned that that alone says a lot.

I looked back on the blog to where we were a year ago.  It was an emotionally draining time for all of us with a new baby and a confusing biopsy.  That combined with Dr Diamond’s desire to start another round of chemo earlier than we had expected really got us concerned.  Amy and I weren’t sure if we would have our Charlotte with us at this time this year.  We spent a lot of time talking about “what ifs” and uncertainties and those never left us in a positive state of mind.  We just knew we had to stick with the plan, even though it could change daily.

Happy birthday to Molly who turned 1 on Sunday.  She has truly been a blessing to our family and we love her dearly!

 

It’s Thanksgiving again, and this year we have even more to be thankful for than last year.  It’s easy to remember some of the big things I am thankful for:
Charlotte’s blood and platelet donors-for keeping her alive during the poisonous chemo rounds.
Charlotte’s bone marrow donor-for selflessly giving Charlotte a second chance at life, even after others said “no”.
The doctors and staff at AFCH-for being our second family and keeping us in the right mood during Charlotte’s rounds.
Our families-for being there every day, then and now.
The other families we met during our stays.  The courage and support they provided us was always needed, and so personal.  They are some of the few who truly understand what lives are like behind those doors.

But I am also thankful for the little things:

Charlotte’s hair has been growing back.  One never expects to get used to shampooing your daughter’s little bald head, yet I did-and I didn’t mind it.  But of all the things to make me smile over the last 6 months, few have had an affect on me like her new head of hair has.

You know that thing that you do as a parent when you are going to sleep and you check on your little ones before you head into your bedroom?  You know when you make sure you pull their covers up tight?  We do that too.  But I never thought I would get used to feeling her forehead for a fever every night before I slept.  I am thankful that it is now a thing of the past-like it almost never existed for a year.

I’m thankful for the opportunity to watch our two daughters grow up with each other in their lives.  It’s easy to take things like this for granted, but I try not to anymore.

Happy Thanksgiving to you.  Thank you for your support.

Posted November 23, 2011 by L. Elske in Uncategorized

6 responses to “November 23rd, 2011. Day +257. The big and little things.

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  1. Happy Thanksgiving Lon, Amy, Charlotte and Molly!!!

  2. So excited that we will all finally be together today! What a wonderful blessing! 🙂

  3. Well said, Lon. And I am thankful for each one of you Elske’s — Lon, Amy, Charlotte, and Molly. You are in so many prayers every day. The presence of the Lord is with you. Happy Thanksgiving!!

  4. The power of prayer is an amazing thing. Happy Thanksgiving!

  5. HAPPY THANKSGIVING TO YOUR WONDERFUL FAMILY. WE ARE SO THRILLED FOR ALL OF YOU OF ALL THIS JOY. GOD BLESS YOU ALL.
    Sharon Schulteis

  6. Happy birthday, Molly!

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