September 11th, 2011. Day +184   12 comments

Sept 11, 2010. 11:58pm.

Sept 11, 2011. 5:51pm.

I am not trying to dispute how significant this date is to the rest of the country-it just means something a little different for us.  Most of you know that today is exactly one year since Charlotte’s AML diagnosis (and exactly 6 months since her bone marrow transplant).  It has been the longest year of our lives and most likely the best one any parent could ask for.  Amy and I spent a lot of sleepless nights in those first few weeks wondering and fearing what life might be like in a year.  We now know, it’s pretty damn good.  Amy and I will be the first ones to to tell you that CJ is far from “out of the woods” and we still worry too much and too often.  All I know is that my life has never been as fulfilled as it has been over the last 365 days.  It is something I wish no father would experience, but I am so very thankful for the bond that I now share with her because of what we have been through.

Those of you familiar with the current secular holidays are also aware that today is National Grandparents Day.  It should go without saying that Amy and I stood on the capable shoulders of our parents more than a few times this year.  I don’t know where we would be without the Grandmas so often helping Amy out at the hospital.  Or the Grandparents watching Molly and Broadway for days that turned into weeks, then months.  How blessed we are that we’ve been able to share our horrible low moments with those who possess the power to comfort us.  Together we have elated at Charlotte’s triumphs, no matter how big or small-I don’t need to remind anyone who was there that first weekend at AFCH how we all cried when Charlotte saw “The Girls” and actually cheered up for a few moments and clapped along with the songs.  Mom[s] and Dad[s], you mean the world to us, and we would be nowhere without you.  Happy Grandparents Day to you.  No one is more deserving.

Amy and I spent a few hours yesterday at a benefit in Fall River for a young boy recently diagnosed with ALL.  It felt so great to be able to give back to families that need our support.  We plan on attending as many of these as we can because we know how much of a difference it can make.

Charlotte’s Tuesday appointment was moved to Thursday, so we won’t have any more information for you until later this week.  But thanks again to everyone for checking in on us, and for all of your prayers and positive thoughts.

Posted September 11, 2011 by L. Elske in Uncategorized

12 responses to “September 11th, 2011. Day +184

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  1. Tears of absolute joy on this day of significance! What happiness 2011 has brought in the form of health and growth for Charlotte! Watching “The Girls” a year ago this weekend was the first step forward in Charlotte’s fight against leukemia. Thank you for sharing your ups and downs of this journey with all of us via the blog. Sending lots of love, hugs and good luck wishes for this week’s doctor’s visit!

  2. Sending continued hugs and wishes to everyone. Happy 1/2 birthday (6mo post-BMT)! and I’ll say again that you’ve done a brilliant job as parents and a family. Thanks for sharing your journey with us.

  3. Yea!!!!! What a difference a year can make!! Wishing you all only health and happiness in the future!

  4. Yes, I remember Sept. 11, 2010 all too well…seeing Charlotte so fragile in the hospital, the tears we all cried, hearing her year long treatment plan…but I also remember the strong hope we had for her future, the hope we never let go of. And to see her now a year later, healthy, playing with her baby sister at a park, it’s just amazing how far she’s come. Life is good on Sept. 11, 2011.

  5. Tears… of joy for you all! What a touching post–you left a lasting impression on my heart. 🙂

  6. What great pictures of Charlotte the road to recovery has truly been an experience. of heartaches and joy. Yes life is good.

    Joe & Sue Kaminski
  7. It is not nice to make Grandma cry but they are tears of joy seeing Charlotte and Molly looking so healthy, tears of disbelief of what we went through and tears of hope and strength. Us “grandparents” have strong kids. We watched you fight a battle so huge we could not comprehend everything Charlotte would endure. We were proud to be at your side helping any way we could. We are family, love is all around us and we will always be at your side. I re-read some of the blog on September 11, we sure have come a long way and Charlotte is our champion fighter.

    Love the pics at the park.

    All our love!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

    Grandma and Grandpa Wags
  8. The Power of prayer and the commitment of family and friends have us all grateful where this journey took us and yes you all must take credit for whatever part you played to have a Happy and healthy family. Auntie Mary

  9. Charlotte is definitely our CHAMPION! And what great parents and grandparents she has!!!

  10. Soooo happy for the Elske family and friends to have made it through an incredible journey. Everyone deserves a “high five” for the strength and courage to help such a wonderfull little girl. She and Molly look so happy in the photos. You have kept me inspired also to remain diligent in my goal to have garments available for patients who need them, when I am back to normal. Life is certainly what you make it, and it shows, you and Amy should be very proud! Congratulations!

  11. Congratulations! She’s absolutely beautiful you guys, Praise God!!!

    Darren & Vicki Weinberger
  12. Still keeping tabs on the Elske quad. Yeah, Yeah, and Yeah!!! 🙂
    Theresa

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