August 9th, 2011. Day +151   7 comments

Looks like these posts are getting more rare and even more scarce in their content.  Remember when you could sit down over a cup of coffee and read all the goings on?  Better hurry up and sip..cause there is nothing new to report here.  It has been another awesome week!  We had no clinic visit today.  CJ goes back again next week for her [hopefully] last day treatment (Pentamidine) appointment.

Charlotte has been enjoying her time outside since the weather has gotten so much better.  She still has to wear a mask when it is windy, but she has no problems with that-she is pretty much used to it.  We are so proud of her and how far she has come.

We received notice last week that her Make-A-Wish wish has been approved.  Sometime after the doctor says she is healthy enough to go (we are guessing this spring), we will be heading to Disney World to take in all of the sights.  She is going to have a terrific time and we can’t wait to start planning it with her!

Now you can get back to work and enjoy your still warm coffee!!  Thanks for checking in on us!

Posted August 9, 2011 by L. Elske in Uncategorized

7 responses to “August 9th, 2011. Day +151

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  1. Yay Charlotte! So exciting to hear you will be going to Disney! We’ll have to meet up when you are dow here!!

  2. Excellent news! We always wait with baited breath to read your posts and it’s so wonderful to hear Charlotte is doing so well. The girls are beautiful and hopefully we’ll see you in Florida! Disney is a magic place!

  3. Great pictures today…your beautiful girls smiling while playing outside and that adorable bath beard! Love to see all of Charlotte’s new hair coming in too! I wonder how long her hair will get before Disney…long like a princess! 🙂

  4. It has been so nice to hear CJ’s giggles when she plays outside. I love it!

  5. It was great to see the 5 of you out tonight even if it was from afar, but the smiles and waves were wonderful. I hope everyone enjoyed the ice cream. It is so wonderful to see that all is going so well. What a great vacation to be looking forward to next spring. We are so happy for you. It’s so great to see all the photos and positive posts. Our thoughts and prayers keep coming your way.

    Joan & Bob Sennhenn
  6. Great to see all the family in the backyard and hearing the laughter.

  7. Good to hear the good news. Wow kids Disney World.

    Joe & Sue Kaminski

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