July 12th, 2011. Day +123   8 comments

My apologies.  It’s been another 7 days since my last post.  Fortunately for us, it has been another uneventful week.  Charlotte seems to be doing great at home!  Amy went back to work last Wed, and is now working Mondays and Wednesdays of each week.  She hasn’t been in the office since before Molly was born!  So this is certainly a sign that things are starting to return to normal.

CJ had no clinic day today.  It’s such good news that Dr DeSantes doesn’t need to see her every week.  We go in next week to Day Treatment for another months worth of Pentamidine, then hopefully not for another two weeks again!  Her hair is now about 1/4″ long and she is looking cute!

Today is Broadway’s 8th birthday!  We got him some little presents and sang “Happy Birthday” to him.  We are glad he is back.  Charlotte sure has missed him and we have too.

Late last week, I received an email from a gentleman whose team participated in the Trek 100 bike ride to benefit the MACC fund.  In June, his team rode in Charlotte’s honor and raised $755-without ever having met any of  us!   Hearing from people like  Joe still makes me cry almost every day.  His emails mean so much to me that it is hard not to tear up every time I read it.  But these are thankful cries.  Thank you to Joe and his team members for their dedication to make a difference!

All of us know that we aren’t done with this journey yet.  But at this point, it would be a waste of good normal family time to worry too much about things turning out for the worse.  It it hard to forget what Charlotte (or each of us) has been through the last 10 months, but we need to keep thinking positively.  Of course, that is much easier said than done.  Having a cancer diagnosis is a forever life changing event.  Sometimes it gets a little easier to change your mind’s direction, but it can always wander back to places we would rather not be.  And the really horrible part is that every few days there is a new family in AFCH spending their first sleepless nights wondering what the future holds for their child.  Amy’s friend’s brother is there right now going through what we did in September with his little boy.  Spend a little time thinking about it, and it gets easier to see why people like Joe do what they do.

Posted July 12, 2011 by L. Elske in Uncategorized

8 responses to “July 12th, 2011. Day +123

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  1. With all that goes on in life, anytime you’re able to sit down and compose a post is wonderful! We all love hearing how everyone is doing and what’s been happening. Praise God for people like Joe and his team mates. It gives cause for encouragement and inspiration that total strangers are caring and concerned and dedicated to help in any way they can. Here’s a “Happy Birthday!” to Broadway! The photos are priceless — CJ’s looking so good!!! Oops. Pardon me, Broadway; so are you! Our love and prayers continue!

  2. As hard as it is to wait for your posts, it’s been worth the wait! Charlotte is looking great – love the dark eyebrows and the hair growing in to match! You are right – we all need to count our blessings and be thankful for what we have. Families like yours reminds us of that even more and that the power of prayer is a powerful medicine. Here’s to many more years!!!

  3. Glad to hear all is well. Happy Birthday Broadway. Charlotte is looking so good.

    Joe & Sue Kaminski
  4. Happy birthday to Broadway! So happy that home is becoming more normal everyday. We are all excited that Amy has returned to work, and Charlotte continues to grow, be healthy and be happy. Life is such a precious gift. We love you all!

  5. I can now give Amy a hug when I read your posts! At least on Mondays & Wednesdays… happy, yappy b-day Broadway!

    Cheryl Batterman
  6. I told the girls, yesterday, that it was Broadway’s birthday. Julia wanted to know if he got a birthday cake and if he would share a piece with her. 🙂 Sounds like he had a nice day and how wonderful that he could be back home for his birthday! Charlotte looks so great with her new hair coming in. She is just doing fantastic! Thank you God for hearing our prayers.

  7. When there is no post I am always thankful… thinking that “no news is good news!”
    Still praying for Charlotte. Thank you, God, for listening!

    Wendy Schulteis
  8. It is so good to hear things are going so well. Charlotte looks great! Joe is my husband and when I told him about Charlotte he immediately wanted to ride in her honor. We have a 5 year old and your posts remind us to be thankful that he is happy and healthy. It also inspires us to include you in our prayers that Charlotte enjoys a long, healthy life. None of us is guaranteed tomorrow, enjoy each and every day.

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