March 31st, 2011. Day +20   3 comments

Charlotte had a pretty good night of sleep.  She woke up this morning at about 8:15 and said she was all done sleeping.  Amy and I weren’t!  But we got up with her and watched some quality Disney JR programming and she was quite happy.

Her WBC was up to 1.3 today and she had 507 neutrophils.  Her platelets didn’t drop as much as we thought, but the doctor wanted to give her a bag of them anyway to try to get her face petechial rash to clear up a little bit.  In rounds this morning, they discussed dropping her other antibiotic, but Dr DeSantes was not ready for that until she had three straight days of 500+ neutrophils.  So we can wait on that for a few days yet.  They also lowered her morphine basil to 0.2 and should lower her TPN to 16 hours tomorrow.  Today they took a cyclosporine level test and it was at 253, so they are pleased.  There is also talk about switching her to the oral version of that because it can also be a little hard to get the level just right, so why wait to do that at home when it could be figured out while we’re here…

She had her chest X-ray today, and while we didn’t get the official results from the radiologist, the attending physician thought everything looked properlike.

Our little lefty!

CJ had a few small bouts of coughing throughout the day, I wouldn’t call them fits like she has been having the last few days.  And no vomiting today either.  She did have two poopy diapers (and two yesterday) so we are hoping this is the mucositis also making its way out of her body.  She weighed in at 15 kg.

Since she woke up so early she had a nap at about 2pm and that lasted until Amy woke her up to change her wet diaper around 5:30, but she was still tired so she slept on Amy’s lap in the recliner another hour and a half!!  She was very cute when she woke up and played happily with Amy and me until we got her to sleep around 11:30.  I am guessing she will be sleeping late tomorrow again.

We got one result back from her viral swab today and it was negative.  I am not sure how many more results there will be coming-at least one that we know of,  but we hope they will all be negative!!  It was another darn good day.

Posted March 31, 2011 by L. Elske in Uncategorized

3 responses to “March 31st, 2011. Day +20

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  1. So happy that things are moving along with encouraging days!! Still praying!

  2. Glad to hear more good news. Keep up the hard fight Charlotte!! go girl, go! Keeping the prayers coming to you all. Love Aunt Terry and Uncle Steven

    Steven & Terry Licitar
  3. Wish I was at Charlotte tea party it looks pretty good. Keep up the good work sweetheart.

    Joe & Sue Kaminski

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