February 25th, 2011   11 comments

Charlotte has still been doing great.  She has developed some little bumps on her shoulder and wrist.  They happen to be located right where we tape up her arm when she has a bath so it is most likely a reaction to the tape or adhesive remove we use.  But to be safe, Amy emailed the doctors and they aren’t concerned.  It hasn’t spread and she has not had other symptoms like a fever that would lead them to think virus.

Amy and I are trying to get our packing list together for the admission on Tuesday.  We really don’t want to leave.  We have had 5 awesome weeks at home with our girls.  Life has felt about as close to normal as we could get except for the fact that we have had another pretty huge step waiting all along.  We are also not looking forward to saying goodbye to Molly.  We know she will be in the best of hands as Grandma E and W can’t wait to watch her.  But it reminds us of how serious this step is and that we need to concentrate on Charlotte’s needs for the next couple of months.

Posted February 25, 2011 by L. Elske in Uncategorized

11 responses to “February 25th, 2011

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  1. Hello,

    I’ve spent sometime reading your blog this morning, and I have cried and smiled. What a journey your family has been on, and will continue on. A very good friend of mine has gone down the road of Leukemia and bone marrow transplant this year. I have watched her, and am praying that the bone marrow transplant will now put her into a better chance for non recurrence.

    Two weeks ago, a VERY close family friends 10 year old daughter was diagnosed with the same leukemia as your daughter, I googled it thismorning to try and make sense of it. What I read didn’t make me to happy. Then I found your blog, your story while certainly not over, is encouraging, and gives me great hope for our friend.

    Thank you SO much for sharing this journey. I will be praying everyday for Charlotte when we pray for our Mackenzie.


  2. Your in my thoughts and prayers as always.

  3. Happy Birthday Lon, have a wonderful day with your girls, forget what is coming this week and enjoy today. We still feel that the Lord wouldn’t bring Charlotte through this far and not leave her with you, (wonderful parents) for the rest of her life, school, college and hopefully grandchildren. (yes, they are the dearest things …. great-grandchildren even better)

    Uncle Jim and Aunt Judy
  4. Happy Birthday Lon! Hope you have a wonderful day with your girls and that everything keeps going just the way you want them to!

  5. Happy Birthday Lon,
    I hope you have a very special day with your family and as always you are in our prayers.
    Love you all Julie

    Uncle Jim and Aunt Judy
  6. Happy Birthday Lon. I hope you and your amazing “girls” enjoy these next two day before you head on to the next step of Charlotte’s (and her amazing, loving, supportive parents) journey. We’re here to help out in anyway. All our prayers and tons of love. Tom & Debbie

  7. Glad to hear things are going good at home. Charlotte has been in my thoughts. The kids and I lit a candle for her at the National Cathedral hoping that all of the different gods that are represented there will keep her safe.

  8. Happy birthday, Lon! Glad you had these past weeks at home. Am keeping you and your wonderful family in my thoughts and prayers for the next leg of your journey. Best wishes for the future!!!

    Steven & Terry Licitar
  9. Happy Birthday, Lon well now everything is about to start and all will go well. All the prayers around the world will be with Charlotte . Our pareyers are also with the family.

    Joe & Sue Kaminski
  10. Happy Birthday to my Godchild! We’ve been thinking of you and your family these last two weeks while in Florida. Haven’t been able to keep up on the blog but Kim filled us in. Many prayers for Charlotte…she’s going to do just great when she has her bone marrow transplant – just as she has since September. Keep the faith! Much love from your Godmother!


    Auntie Sharon & Uncle Dean
  11. Amy & Lon – My family and I pray for you and Charlotte and little Molly daily. You are amazing parents. I am so impressed with the stregth you show everyday writing about what you are going through. Please know that the Graffins are not the only one praying down here in Georgia. Many of our friends and collegues pray for Charlotte as well as a couple 100 others we know and love. God has your little girl in the palm of His hand. Please rest in that.

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