January 29th, 2011   10 comments

Things are still going well at home.  About as well as we could expect!  Charlotte has been feeling great and acting very normal and extremely energetic.  You wouldn’t know there was anything wrong except for her cute little bald head and medications sitting on our counter:)  We wish we could just get her outside and run a little bit!!!  We’re going to try and do a family walk today as the weather seems a bit warmer today.

We finally have news for Charlotte’s return visits to the hospital.  She will be going in Wed Feb 9th for her bone marrow aspirate and biopsy, lumbar puncture, and PICC line placement.  Then we return the next day for a CT scan and her monthly Pentamidine medicine.  Both days she needs to fast before the procedures and she will be sedated.  Amy and I are both starting to get scared because we now know that this is all still going forward and that they aren’t just going to call us anymore and say “Stay home, she is just fine.”  Nobody ever told us that call could come, but it still would have been swell to receive it anyway.  So we are now getting into a BMT mindset and trying not to think about the billions of possible bad things that could happen.

Amy has requested I tell her a daily mantra…..to keep her staying positive when she starts feeling weak.  Here it is……

She’s done great….she’s doing great….the odds are in her favor.

This will be her cure!!!!!

Thank you all again for your prayers for Charlotte.  With how well she has done, we know your prayers are working.  Now more than ever, we need more prayers.  This transplant will be the biggest battle Charlotte has yet to face.  She is a fighter, but so is transplant and AML.  We need the prayers and positive thoughts to continue for her to not only thrive during transplant, but to have this be her cure.  Let her be one of God’s AML miracles 🙂

 

Posted January 29, 2011 by L. Elske in Uncategorized

10 responses to “January 29th, 2011

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  1. Amen.

  2. God has big plans for Charlotte and your family. Trust in that with all you have. Prayers go out daily (or more) for you all. I think you are an amazing family and I marvel at your strength. She’s doing great. YOU’RE doing great. The odds are in her favor. This will be her cure! AMEN!

    Kim Kirchberg Lafler
  3. She has come so far and now the final fix and she will be
    on the road to recovering. Amy & Lon you both have done so well keep your spirits up it will be ok. It is alot for a little girl to go thru but she is holding up her end.

    Joe & Sue Kaminski
  4. Charlotte has my best prayers. She’s amazing. XO

  5. Amen! I’m a believer in Charlotte’s miracle!

  6. Keep positive thoughts. All of us out here are. This will be her cure so don’t worry about it. Ha Ha.

    Love & prayers,

    Ma Kaland

  7. Just a note to let you know you ‘re on my mind.And let you know the angels will help brush away your cares with their gentle wings. Keep up the spirit as hard as it is you are doing a great job with your family. Love to all Aunt Mary

  8. I am one of God’s AML miracles. I am 3 years out of transplant and perfectly healthy. I received an umbilical cord blood transplant Dec. 18 2007. A friend of mine sent me your website. I just want you to know that I’ll being praying for Charlotte and your family. I’d be happy to communicate with you if you have questions or anything I can help with….I haven’t read your whole blog so don’t know all of your circumstances.
    Not sure if my email shows up for you, so I’ll leave it here:
    martelld@aol.com
    Bless you dear family,
    Deb Martell

  9. Our prayers are always with you. Been keeping up on the blog. Thanks for that. Hugs to all.

    Donnie & Marilyn

  10. Love your post and picture of Peanut playing in the snow… just like a normal 2 year old. Hugs to all!

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