October 6th, 2010. Mommy’s first day back at work.   6 comments

Mommy went back to work today and Daddy got to stay with her for the day.  Grandma E showed up with my MickeyD’s coffee!  We played and walked for quite a while this morning.

Charlotte’s neutrophil count was still 0.  But during rounds the doctors mentioned that her monocytes were going up and that is a good indication that the neutrophils should come up soon.  So once again, we are hopeful that we may have some “going home” news in the next several days.

The doctors again complimented Charlotte on her activity level and felt bad that she was still within the confines of the hallways here.  They say most kids don’t have her energy level and desire for mobility.  But they do say that that is nothing but a good thing in her fight against cancer.  The more activity, the better.  In my negative thinking mode, I fear that because it appears that Charlotte is being such a strong fighter and bouncing back from chemo with great results, I am also worried that the Leukemia will survive the chemo and come back with a similar vengeance.  The doctors are not worried about that.  They said that is usually not the case.  They feel that Charlotte has reacted the exact way they would have liked her to to the round one treatment so far.  They are hopeful that the next bone marrow test should prove that her body is responding well to the treatment.  They have seen nothing in her yet (besides the not-always-predictable-AML diagnosis) that would think there is reason to worry about the outcome of the test.  So hopefully that good news can carry over to the end of next week.

They also clarified that the bone marrow test will not take 5 days as Amy found out yesterday.  They usually have preliminary results within an hour that they feel comfortable with, but the official results will take a day.  Dr Diamond will also order another cytogenetic test to see if the chemo had any effect on the previously noticed chromosomal abnormalities.  It is Dr Diamond’s belief that the chemo may leave no traces of that either.  The results of the cytogenetic tests will take the standard 5 days.

More good news…Charlotte is doing so well with her post treatment, and has shown no recent rashes or fevers so they are removing one of her two antibiotics.  So that means considerably less tubie time…she should be a little more free to roam around sans tubies.  That makes us all feel a little better!  The picture shows her at her nap time, just moving all over the bed in her sleep.  Without her tubies attached, she really moves around to get comfortable.  This is more of a relief for Amy because with every Charlotte movement in the night, she worries that Charlotte could accidentally pull on the port needle and make it a long night for everyone.  Perhaps Charlotte can spend a few hours during the night tubie free as well.

As I mentioned before, today was Mommy’s first day back at NESCO.  She said it felt good to be back and have her mind on something else for the day, but she missed Charlotte.  I know how that feels.

 

Amy and I would just like to say “Thank you” to everyone that has taken the time to write us emails or send cards or gifts.  We just have not had the time to send thank you cards out or respond to all of the emails and cards we have received.  We know that there are countless people out there that are thinking of us and praying for us.  Many of you we have never met or may never meet.  But your kind words, positive thoughts and prayers have gone a long way in helping us get through this tough time.

God bless all of you.

 

 

Posted October 7, 2010 by L. Elske in Uncategorized

6 responses to “October 6th, 2010. Mommy’s first day back at work.

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  1. I am all smiles reading today’s post! Good news all around! Charlotte continues to amaze everyone! Glad to hear Daddy got to spend the day with Charlotte and Mommy got some time to herself. I know that must be so hard but it’s good to recharge your batteries for Charlotte and her little brother or sister. 🙂 You are such great parents! Love you guys!

  2. Charlotte is on the prayer chain at Calvary Lutheran Church in Perham, MN. A member asked me last Sunday how Charlotte was doing. She is in their prayers. It is good to read about her positive progress.
    Mary (Kim’s aunt; Karen’s sister)

  3. Sounds like Charotte is doing fine. There will be more good then bad coming soon. Keep up the good work.

    Joe & Sue Kaminski
  4. NESCO really rocked with Amy back in the office yesterday! Or so I’m told as I came down with a sinus infection and stayed home to quarantine myself away from Amy… and Peanut. Good to hear Lon was able to take a day from work so Amy could get away from the hospital environment. It must be confining after so many weeks cooped up… and worrying the whole time. Be strong!

    Cheryl Batterman
  5. I’m glad to read things have been going well this week. I haven’t been able to get to the internet much this week and won’t again until we get internet at home next week, but know that you are in my thoughts often and always in my prayers. Hopefully we can talk Friday Amy!

  6. Excellent news today. Keep strong. 🙂
    Hugs and Prayers,
    Theresa

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