September 16th, 2010   10 comments

Charlotte woke up happy this morning at 7:30.  She had a pretty restful sleep.  I think we all did.  She actually felt like eating a little first thing today so that is a good sign.

The doctors said that her numbers looked good again this morning.  The chemo is apparently working as it should.  She had a platelet transfusion yesterday as her numbers were dropping.  Her platlet count yesterday was 15,000, today it was 140,000.  So I think that is a good sign as well.  Her energy level is definitely up today.  She needed a blood transfusion today as her hemoglobin levels were getting low again.  Tomorrow the doctors expect her neutrophils to drop to below 500 so she will be classified as neutropenic.  This means she will be especially vulnerable to infections and will need to wear a mask when out of the room.  I hope she takes to it quickly.

Last night was her final night for both the daunorubicin and the etoposide during this round so Charlotte was able to walk around a little bit without being hooked to her IV.  She did make a few rounds down the halls and played in the play room for a little while.  She napped from 1:15-3:15, so a little less than usual.

I went back to work today and stopped by the room during my noon hour to have lunch with my girls.  They are both so special to me.  Amy had to leave Charlotte today as well for an afternoon pre-natal checkup.  Everything is still looking good with the new baby so Amy is doing a great job taking care of both our little pumpkins!

She spent a little time in the family lounge watching football on ESPN.  Grandma and Grandpa tried to change the channel a couple of times, but Charlotte just said “Football” so that is what they watched for a little while.  She is really getting used to our primary nurse, Katy.  She often raises her palm up and says “Katy go?” when she is not in Charlotte’s room.  Very cute from a girl that was shy around everyone here just a week ago!

She wanted another bath tonight and we had a pretty good time.  Charlotte has to wear a protective wrap on top of her port access when she bathes so she doesn’t get the surgical area infected.  She is not supposed to get the wrap very wet.  Unfortunately that means she can’t splash around a whole lot while in the tub.  So she could have a little more fun, but it is probably better that she doesn’t…

Still another good day here in the hospital.  Many unmeasurable thanks to Grandma and Grandpa Elske who have been with us every day for the last week. They are willing to go get us food and drink, keep us company, and watch and entertain Charlotte while we try to attend to the other hospital crap we need to do.  They watched her while Amy was at her Dr appointment and I at work, and never complained…Charlotte was even in a terrific mood when I got back “home” from work because of them!  Mom and Dad, thank you for everything you have done and continue to do.  We could have never done this without your love and support and comfort.  But I think Grandma will always want to be with her sweetie and Grandpa doesn’t mind chatting up to the nurses all day long!  Thank you for everything!

Posted September 17, 2010 by L. Elske in Uncategorized

10 responses to “September 16th, 2010

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  1. Yea for another “good” day! Great to see a little smile in the bathtub picture. That’s our Charlotte! We miss you all and can’t wait to visit again. Sending our love and big hugs.

  2. Wonderful, wonderful updates. You have so much support and love, your little pumpkin WILL make it through this. 🙂 Love and Hugs from the Peacheys.

  3. It’s sounding better each day. Amy I’m glad you are doing well to. And Lon thanks for the updates. Louise and Lyle you have always been great friends and so glad you can be there for the kids. And Charlotte you just keep getting better. Joe & Sue

  4. Charlotte, you keep up the great work! I know is tough, but you are a tough little girl. Tagger misses seeing you across the street. Love Debbie
    Lon & Amy, You all three are in our prayers and thoughts, please don’t hesitate to ask if there is anything we can do. Love Tom & Deb

  5. Charlotte – It’s so good to see your little smile and hear that things are going better for you. And Amy, I’m so glad that you got a good report on your checkup as well. It’s wonderful that you’re able to put out this blog to keep all of us connected. Being so far away, I can’t wait to get to work in the morning so I can checkup on all of you and see how your day went. Lots of prayers are coming your way from Tennessee. Lots of love to all of you! Cyndee and Earl

  6. Amy, Lon, and Charlotte:

    I am so moved by the honesty, hope, and love that are so evident in your blog entries. Please know that friends from across the country are sending good wishes for bravery and health for your sweet girl. Keep the updates and the pictures (LOVE the one of Charlotte with the therapy dog!) coming, and hang in there.

  7. So happy to see the great reports everyday on Charlotte! She’s an inspiration to us all, and continues to amaze us with her adaptation and understanding. Can’t wait to visit you again Charlotte – stay healthy and strong and keep Mommy and Daddy plenty busy with toys, movies and discussions! Love you little girl. Aunt Lynn, Uncle Bret & Cousin Drew

  8. Know that I love you my friend, Lon. My thoughts and prayers are with you and your family…especially that beautiful angel of yours. May God wrap his loving arms around her, protect her, and heal her soon. I will keep checking on her progress and sending positive vibes your way.

  9. You guys are amazing!!
    Charlotte looks like a great spirited, strong little girl. We pray each day that God keeps her strong and full of courage through this trying time.

    And the two of you – Someday Charlotte will look back and thank you for the wonderful, caring, and nurturing parents you are. Parents have a special bond that I don’t believe can ever be broken!

    Lots of Love, Strength, and Hugs to you All!
    Roxy and Ryan

    Roxy Ehrke and Ryan
  10. Charlotte – Grandma & Grandpa have some packages from us. I hope that you have fun with them! We send our love and prayers.

    Uncle Dean & Auntie Sharon

    Auntie Sharon & Uncle Dean

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