March 11th, 2018. Day +2557. 7 years post-transplant!!!   1 comment

It’s been a long time since I’ve last posted here (keep up with Amy and the girls on Facebook!!) and we’ve had another several months worth of happy memories that we will all cherish.  Charlotte’s annual appointment with Dr. Diamond went well and she is happy with how Charlotte is growing and progressing in school.  Amy and I spent a week and a half at Disney World in December with the girls and we had a wonderful time .  Charlotte and Molly have been enjoying school (save for homework) and spending time with friends and family around the holidays!  Charlotte and Molly (and Mommy) just wrapped up another successful year of selling Girl Scout Cookies, with each girl making her personal goal!  Charlotte has been active in archery in her school and she is becoming quite the marksman!!  I’ve proud of her for sticking with it, even though she wasn’t terribly happy to have us sign her up!  🙂

Today marks the 7th year since Charlotte received her life-saving stem cell transplant from our real-life angel, Erin.  We’ve been in constant contact with her and even seen her twice since my last update on this site.  We met up with her while we were in Disney World and she spent this whole past weekend with us.  She really has become part of our family and we’re so thankful for all she has given us.  She has made our family complete and we wouldn’t be where we are without her.

 

Posted March 11, 2018 by L. Elske in Uncategorized

October 8th, 2017. Day +2403   1 comment

We’ve had another wonderful summer with our family.  Charlotte and Molly are healthy and doing well. They both started school last month and are enjoying it!  We added another member to our family in July!  Harris is a Springer Spaniel, like Broadway, and boy is he a handful.  But we are having a great time with him.  The girls are wonderful with him and he’s already become an integral part of our family.
We spent a weekend with Erin, Charlotte’s bone marrow donor, last month as well!  All of us visited American Family Children’s Hospital and saw several of Charlotte’s old nurses.  They were so happy to meet Erin and we were so proud to show her off!  After that we had a customary Wisconsin fall weekend, including visiting the pumpkin patch and spending time with the family.
We’re so grateful to have her in our lives and we continue to pray for all of those affected by cancer every day.

This slideshow requires JavaScript.

Posted October 8, 2017 by L. Elske in Uncategorized

March 11th, 2017. Day +2192. 6 years since Bone Marrow Transplant!!!   2 comments

DSCN3707

This is us 6 years ago  (Molly was staying with Grandma and Grandpa while we were inpatient).  March 11, 2011 was the date of Charlotte’s Bone Marrow Transplant from an anonymous donor.

Here’s a picture of her IV rack and the bag of stem cells at the top center.DSCN3725

We weren’t sure how Charlotte’s story would unfold, but here we are today- a very happy and healthy family.

 

This slideshow requires JavaScript.

I would just like to say a  very special “Thank You” to the Doctors, nurses and rest of the staff at AFCH, to our friends and family who were praying for us, and to Erin-Charlotte’s real-life angel.  We wouldn’t be here without all of you.

Posted March 11, 2017 by L. Elske in Uncategorized

December 15th, 2016. Day +2106.   2 comments

 

We had Charlotte’s yearly oncology appointment with Dr Diamond this afternoon.  It was a pleasant appointment, catching up on the year’s activities.  We got to share our spring trip to Disneyland with Erin, and she loved hearing about Charlotte and Molly doing well in school.

All of Charlotte’s numbers looked great.  WBC was 5.1, Hemoglobin 12.9,238k Platelets.

When we were saying our goodbyes, we ran into Dr DeSantes.  We haven’t seen him in a few years!  He was all smiles when he saw how great Charlotte looked.  It was great to see him again and wonderful to know that he is still at AFCH performing miracles every day for kids like Charlotte.

We also stopped up on the 4th floor to say hello to the nurses and saw plenty of familiar faces!  Molly and Charlotte loved talking to all of them and telling them how their year has been going.file-dec-15-9-36-58-pm

 

Thank you again for checking in on us and following Charlotte’s story.  We hope you have a  blessed and safe holiday season.

Posted December 15, 2016 by L. Elske in Uncategorized

July 13th, 2016. Day +1951. We will miss you Broadway.   1 comment

And just like that, it’s been another 4 months since our last blog update. With Amy being IMG_1451on this Facebook thing , (that I figured would never take off) I’m sure many of you have kept up to date with our daily comings and goings.

We’ve had a great 4 months. We celebrated Charlotte’s 8th birthday in May. We had a wonderful time with Charlotte’s friends and our families. I had another terrific Canada fishing trip with Grandpa Elske and this brother I have and some other great friends. It was a very enjoyable trip and I’m thankful I was able to go again.

 

 

 

DSCN2606We spent this past Saturday with the Badger Cancer Childhood network playing around at Little Amerrika, and we found an old friend! We were originally introduced to Gloria and Ina on the first weekend Charlotte was admitted to the hospital. Ina was diagnosed with AML as well when she was 2. Gloria was there to help us through some of the hard times and we’ve kept in touch using that facebook thing, but we haven’t seen each other since Charlotte was inpatient. Ina has been doing well and it was awesome to reconnect and share how our families are doing.IMG_1450

 

 

 

 

 

 

OLYMPUS DIGITAL CAMERA

We have been very blessed over the years with our good friends and our families and our IMG_5663health. However, today we had to say goodbye to our not-often-mentioned-but-always-loved sidekick, Broadway. He has been in our lives since he was the cutest little puppy and he has been an absolute joy to have around.   He truly was an awesome dog and a great friend. We will miss him dearly and will always love him. He turned 13 years old yesterday.

 

Posted July 13, 2016 by L. Elske in Uncategorized

March 18th, 2016. Day +1834. 5+ years after transplant!!   1 comment

File Mar 18, 10 41 17 PMTime flies when you’re having fun.  It’s been a terrific 3 months.  The girls have been happy and healthy for the most part-only missing a few days from school here and there because File Mar 18, 10 45 32 PMof the typical seasonal illnesses.  They are both doing well in school and having playdates with friends and getting together with their cousins.  And it looks like spring is finally making an appearance.  The days are starting to get longer and snow is becoming more of a memory than a daily reminder of the long Wisconsin winter.

 

 

 

 

 

File Mar 18, 10 42 53 PMSince we have been fortunate enough to get to know Erin (Charlotte’s bone marrow donor) over the last 4 years, we have all been looking forward to the possibility of us getting together around March of this year.  We knew we needed a completely special way to File Mar 18, 10 39 17 PMcelebrate the 5 year post-transplant mark.  So we decided to take the girls to California to see her!  We recently returned home from a trip to Anaheim that we were able to spend just hanging out with Erin.  It was a joyous occasion and one none of us will ever forget.  We enjoyed three days in Disneyland as well as a trip to the San Diego Zoo, and a wonderful day partaking in a California style beach party.  We were able to meet several members of her family and some of her good friends; all who were as pleasant and kind to us as Erin always has been.  She feels just as important to our family now as she was over 5 years ago, and we wouldn’t be the same without her in our lives.  We are truly blessed to have such a caring and supportive network of friends and family.

Posted March 18, 2016 by L. Elske in Uncategorized

December 18th, 2015. Day +1743. Charlotte’s yearly appointment with Dr Diamond.   2 comments

IMG_2940

Molly, Katy and Charlotte

Dr Diamond and Charlotte.

Dr Diamond and Charlotte.

Today we visited the American Family Children’s Hospital for Charlotte’s yearly checkup appointment with her oncologist, Dr Diamond.  We had Charlotte’s blood drawn and her echocardiogram done last month.  Dr Diamond looked over the results today and was not disappointed.  It was great to see her again and hear that she thought Charlotte looked healthy and well.  We can’t hear that enough.  Dr Diamond is very near to our heart and had given us so much to be thankful for.  Charlotte’s WBC count was 4.5,  Platelets 254k, Hemoglobin 13.3 and 1800 neutrophils.

While we were there, we stopped on the 4th floor to see the nurses.  We saw Tony and Angie and Kristen and even got to see Katy again!!!  We also saw a mother walking her little bald boy down the hall pushing his IV cart.  She was seven months pregnant.  Boy did that bring back some emotional memories.  We will be thinking of them this holiday season and pray for the best.

I wanted to thank all of you for looking in on us this year.  I apologize that the posts have been few and far between.  But know that we are still here and doing well, even if I am not posting nearly as often as I once did.  Please think about the families this year who will be spending their holidays behind closed doors like those on the 4th floor.  And consider making a donation to a worthy charity, and donate blood as often as you can.

Thank you, and have a safe and memorable holiday season.

Lon

Posted December 18, 2015 by L. Elske in Uncategorized